Someone Like Noah
I was born with cystic fibrosis and wasn’t expected to make it to adulthood. Yet here I’m 45 years old and you’d think I’m 100%… Read More »Someone Like Noah
June 2019
Shedding Light on the CF Diet
Shedding Light on the CF Diet and How I approach this High-calorie, High-fat Lifestyle with My Patients — Paige Riley, RD, LDClinical Dietitian II, Emory’s Adult… Read More »Shedding Light on the CF Diet
I Did It! I watched Five Feet Apart
My take on of Five Feet Apart – The Movie As you know from my previous post (Why Im Not Ready), I did not see… Read More »I Did It! I watched Five Feet Apart
Still No Cure
If Cystic Fibrosis Was Cured The new triple-combination drug almost set for potential global/FDA approval will introduce many of us with CF to a new… Read More »Still No Cure
CF and Fatherhood – Happy Father’s Day 2019
Men with cystic fibrosis aren’t often fortunate to hear the word “dad” when someone is referring to them. About 98 percent of all male CF patients… Read More »CF and Fatherhood – Happy Father’s Day 2019
Who Has Cystic Fibrosis?
Cystic fibrosis is an invisible disease. However, there are ways to tell if someone has CF through some stealthy observation. Below are 9 ways to… Read More »Who Has Cystic Fibrosis?
CF Independance Day: Peachtree Road Race 2019
On the 4th of July, most Americans spend the holiday celebrating America’s independence by attending a parade or sleeping in and enjoying a day off… Read More »CF Independance Day: Peachtree Road Race 2019
My Kid is SICK! Summer Flu
Well, it’s summer time and my daughter was just diagnosed with the flu… The three-letter word that no parent wants to hear from the doctor.… Read More »My Kid is SICK! Summer Flu
The Birth of a Movement!
It was October of 2016 and we had just finished our 17th Wish for Wendy softball challenge and while we raised a lot of money for… Read More »The Birth of a Movement!