The Strange World of Cystic Fibrosis
Living with CF is a strange world. I have been advised for most of my life not to be within 6 feet of someone who… Read More »The Strange World of Cystic Fibrosis
Living with CF is a strange world. I have been advised for most of my life not to be within 6 feet of someone who… Read More »The Strange World of Cystic Fibrosis
I am excited to announce that we have reached an agreement with our publisher on the latest version of The CF Warrior Project. I have… Read More »The CF Warrior Project Volume Two
What is normalcy really? It varies depending on who you talk to. For me, normalcy is being careful with who I’m around and where I… Read More »My Normalcy is not Your Normalcy
I remember the summer before my fourth grade year at Mt. Vernon Presbyterian School. I was really nervous. My teacher was going to be Marsha… Read More »Mrs. Powell – More Than A Teacher
For all of you wearing masks in places where few people are doing so and getting those uncomfortable looks from those around you for doing… Read More »Wearing a Mask is not for the Weak
I saw a post the other day from someone whose mother had died a few years back and the post said that she doesn’t have… Read More »My Favorite Teacher: To Mom on Our First Mother’s Day Apart
Brian Kemp, do you believe in unicorns? Not the mythical horse-like creature with a horn in its head but Merriam-Webster’s other definition of a unicorn:… Read More »Cystic Fibrosis Patients STILL Fight for Higher Spot in Coronavirus Vaccine Line. Why?
A month ago, after my last blog, I made a call to my doctor to see if I should wait for the COVID vaccine knowing… Read More »Doing the Right Thing: Getting the COVID Vaccine
The CDC Director has adopted the following recommendations from the ACIP (Advisory Committee on Immunization Practices) in December 2020 with regards to the order in… Read More »How Long Will I Have to Wait?
Dear Wendy, Happy Birthday! You have a very special gift coming this year! I want to tell you more about that gift but first here… Read More »Happy 50th Birthday Wendy