Today May 2019 will come to and end, which means CF awareness month is nearly complete.
It’s been a crazy month looking back and we wanted to highlight the three highlights of the month.
- The CF Warrior Project came out on May 15th !! the CF Warrior Project received so much support from the community. I loved seeing these warriors being recognized (many in their awesome shirts) for not only their feats but also their attitudes.
- Five Feet Apart finished its time in theaters but not before raising a lot of awareness for cystic fibrosis. I still have yet to see the movie but will probably do so when it hits Red Box. I have read the book and found it to be a good depiction of cystic fibrosis. Did you know Claire Wineland, one of our CF warriors, worked as an advisor on the movie?
- Then to cap off the month Vertex announced they will be seeking FDA/global approval of the triple combination therapy which will positively affect 90% of the CF community…including me.
This is the first breakthrough drug which will actually affect me directly!
Unfortunately this month we lost a lot of great people with cystic fibrosis, including our very own CF warrior Natalie “Graziano” Harris who was a singer and actor and survived two double-lung transplant.
Even though things continue to improve in the world of cystic fibrosis, without a cure, we are still losing so many important people in our lives. Despite that fact that May has now come to an end let’s not stop raising awareness. We still need a cure and together we will find one!
Live your dreams and love your life.
Andy