I Did It! I watched Five Feet Apart
My take on of Five Feet Apart – The Movie As you know from my previous post (Why Im Not Ready), I did not see… Read More »I Did It! I watched Five Feet Apart
My take on of Five Feet Apart – The Movie As you know from my previous post (Why Im Not Ready), I did not see… Read More »I Did It! I watched Five Feet Apart
If Cystic Fibrosis Was Cured The new triple-combination drug almost set for potential global/FDA approval will introduce many of us with CF to a new… Read More »Still No Cure
Men with cystic fibrosis aren’t often fortunate to hear the word “dad” when someone is referring to them. About 98 percent of all male CF patients… Read More »CF and Fatherhood – Happy Father’s Day 2019
Cystic fibrosis is an invisible disease. However, there are ways to tell if someone has CF through some stealthy observation. Below are 9 ways to… Read More »Who Has Cystic Fibrosis?
On the 4th of July, most Americans spend the holiday celebrating America’s independence by attending a parade or sleeping in and enjoying a day off… Read More »CF Independance Day: Peachtree Road Race 2019
Well, it’s summer time and my daughter was just diagnosed with the flu… The three-letter word that no parent wants to hear from the doctor.… Read More »My Kid is SICK! Summer Flu
It was October of 2016 and we had just finished our 17th Wish for Wendy softball challenge and while we raised a lot of money for… Read More »The Birth of a Movement!
Today May 2019 will come to and end, which means CF awareness month is nearly complete. It’s been a crazy month looking back and we… Read More »CF Awareness Month 2019: Three things that kicked some CF Butt this year.
Most people look forward to traveling over the holidays, but when you have a chronic illness, travel involves way more than just jumping on an… Read More »7 Extra Steps: Traveling with Cystic Fibrosis
Founder of Claire’s Place Foundation At the age of 13, Claire Wineland founded Claire’s Place Foundation, Inc., a 501(c)(3) non-profit organizationproviding support to children and families affected by… Read More »Remembering CF Warrior, Claire Wineland