“Hope-Raising” Through the CF Warrior Project
Just 9 more days until “The CF Warrior Project: 65 Stories of Triumph against Cystic Fibrosis” goes on sale! Some have asked “Why is this… Read More »“Hope-Raising” Through the CF Warrior Project
Just 9 more days until “The CF Warrior Project: 65 Stories of Triumph against Cystic Fibrosis” goes on sale! Some have asked “Why is this… Read More »“Hope-Raising” Through the CF Warrior Project
This is a very special year for CF awareness. Not only is there a New York Times best-selling book (Five Feet Apart) and a blockbuster… Read More »2019: A Special Year for CF Awareness
Dating with a terminal disease like cystic fibrosis is one of those things that is so difficult to do whether you’re a teenager or an… Read More »Someone Special – Dating with CF
Last week was very exciting. I got the first proof of The CF Warrior Project. I know a lot of people thought that meant the… Read More »Far From Done
I know there is a lot of division in the CF community regarding the latest teen drama “Five Feet Apart.” People with CF are either… Read More »Why I’m NOT ready to see Five Feet Apart
Most people connected to cystic fibrosis have heard the story about the boy who could not pronounce cystic fibrosis and therefore called it sixty-five roses.… Read More »The Significance of 65 Roses
We had the opportunity to do a Q& A with New York Times bestselling author, Rachael Lippincott. This past week her book Five Feet Apart, hit… Read More »Q&A with Rachael Lippincot
65. Having CF means when someone is clubbing, we aren’t partying in Miami. Clubbing means the amount of oxygen in the blood is reduced therefore… Read More »65 Things about Having Cystic Fibrosis That You Won’t Often Find on Wikipedia